My Life With Sacral Agenesis

My Life With Sacral Agenesis

    Living with a rare condition, where more than half of your spine is missing, makes life very different from everyone else's, and maybe very difficult too...or does it? Jessica is only 2 feet tall. She uses a wheelchair to get around. She also challenges the way you think about being different.        Find out all the things Jessica can do, learn about sacral agenesis / caudal regression syndrome, and join Jessica as she provides her own perspective on living with this condition. All proceeds from the sale of this book are donated to iSACRA, a non-profit organization, and are used to provide support and information to persons with sacral agenesis/caudal regression syndrome and their families worldwide.  iSACRA promotes awareness and collaborates in research and advocacy to enhance the quality of life of persons with this condition and to advance medical knowledge.

 

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